Disconnected Patient Journeys: The Hidden Cost to Pharma and Patients

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Blog Post
January 14, 2025

Disconnected Patient Journeys: The Hidden Cost to Pharma and Patients

Courier Health

Patients prescribed specialty therapies often find themselves navigating an overwhelming and fragmented healthcare journey. From deciphering their diagnosis to dealing with insurance requirements, managing side effects, and adhering to complex treatment regimens, the process can feel like a maze with no clear path forward.

The result? Up to 50% of patients fail to stick to their prescribed therapies, leading to unrealized health outcomes.

For many patients, these struggles are compounded by an experience marked by inconsistent communication, fragmented systems, and avoidable delays. This fragmentation isn’t just frustrating; it can mean the difference between life-changing progress and stalled care. 

Patients interact with multiple healthcare services and providers, each adding complexity to an already arduous process. Understanding and addressing patient journey mapping is essential to improving their experience.

While some of these challenges are inherent to the broader healthcare landscape, they are too often amplified by outdated technologies, siloed data, and manual processes that fail to meet the needs of today’s patients. As patient expectations evolve, so too must the strategies employed by healthcare providers and biopharma companies to meet patient needs more effectively.

The ripple effects of these inefficiencies are profound for biopharma companies, resulting in missed opportunities to engage eligible patients, declining adherence rates, and diminished program outcomes. Addressing these gaps isn’t just about adopting digital solutions; it’s about rethinking how we connect with patients at every stage of their journey. 

By leveraging next-generation technologies and patient-focused strategies, we can move toward a more integrated and personalized healthcare system. This approach enables biopharma commercial teams to streamline workflows, optimize engagement, and support patients where and when they need it most. 

Solving these issues—and gaining real-time visibility into where patients stand in their journey—is the first step toward building trust, boosting adherence, and creating a better experience for all.

Why Do We Have Disconnected Patient Journeys?

Consider a patient with a rare autoimmune disease. 

It may take five to 10 years of symptoms, misdiagnoses, and ineffective treatments before they discover what’s wrong. Even then, their path to accessing treatment remains arduous. 

Between insurance approvals, specialty pharmacy delays, and a lack of clear communication across patient care teams, individuals and their families often feel overwhelmed, confused, and unsupported.

The underlying reasons for these disconnects are outdated systems that fail to integrate and share data across platforms and teams. As a result, patients and the teams that support them are left stuck in a maze of administrative hurdles, which lengthens the time to treatment and compounds emotional and physical stress.

To transform the patient’s healthcare experience, it’s critical to invest in patient-centric technology solutions designed specifically for the unique needs of life sciences. Solutions for commercial teams enabling data integration, integrated communications, and a patient-centric approach are key to creating a healthcare journey that alleviates burdens and produces better outcomes.

The Costs of Disconnected Patient Journeys

Fragmented patient journeys, especially in specialty therapies, come at a steep cost to patients and biopharmaceutical companies. Waiting to receive a diagnosis can prolong patients' suffering and exacerbate their health conditions. 

Disjointed data flow and unclear or stalled next steps confuse patients and the teams that support them, contributing to the operational complexity that can result in patients falling through the cracks and never starting or abandoning treatment. 

Financial burdens add to this negative patient experience, with individuals who require specialty medications often incurring higher out-of-pocket expenses due to insurance complications or access barriers. These challenges contribute to reduced treatment adherence, with studies showing that 50% of patients with chronic conditions stop taking prescribed medications within the first year.

The ripple effects on pharmaceutical companies are profound. Non-adherence alone costs the industry an estimated $637 billion annually in lost revenue

Poor patient retention diminishes the lifetime value of therapies, particularly for specialty medicines that require ongoing usage to achieve results. Additionally, patient dissatisfaction can tarnish a brand’s reputation, eroding trust among healthcare professionals and payers.

These challenges extend to patient populations participating in clinical trials as well. Fragmented communication and logistical challenges can lead to reduced patient engagement, missed appointments, or incomplete data collection at every stage of the patient journey—each of which compromise health outcomes.

Put simply, a disconnected pharma patient journey harms everyone. Patients experience unnecessary stress and financial strain, while pharma companies miss opportunities to demonstrate the full value of their therapies. Overcoming these issues is a moral imperative.

How Courier Health Bridges the Gap

Courier Health is helping biopharma companies transform the patient experience with an innovative CRM platform that specifically addresses the complexities of the specialty medicine patient journey. Its patient-focused CRM connects disparate data sets, systems, and teams to provide a single source of truth around what’s happening along the patient journey to access treatment. This improves visibility, simplifies decision-making processes, eliminates inefficiencies, and supports personalized engagement.

Courier Health enables more automated, personalized support across field access, reimbursement, and patient services by bringing critical patient-level data, including patient characteristics, into a unified platform. It also surfaces real-time patient journey insights that flag at-risk patients to prioritize outreach. 

The results speak for themselves: Programs powered by Courier Health have reduced time-to-start by 67% and increased patient starts by 15%.

Courier Health patient CRM users also report up to fivefold efficiency gains with a single command center to manage their day-to-day workflows. Without jumping between multiple systems, teams can focus on proactive, patient-centric strategies rather than manual work. 

The Future of Connected Patient Journeys

The future of biopharma lies in leveraging purpose-built technology to create a connected, digital-first experience—that is, to “connect different data sets and use that visibility to deliver the right service at the right moment in the manner or modality that the end user prefers,” as one expert interviewed for the “State of Patient-Centricity in Biopharma” whitepaper put it.

Technology, patient journey analytics, and artificial intelligence (AI) will continue redefining how biopharma companies engage patients, improving the likelihood of receiving timely care while reducing miscommunication and delays.

Biopharma companies must prioritize investing in these technologies to remain competitive; the demand for personalized, omnichannel care is growing, and companies that fail to modernize risk falling behind. 

As one of the biopharma CEOs at Courier Health’s Patient Innovators Summit advised, dedicating 20% of team initiatives to testing new ideas and innovation is a practical way to embed forward-thinking strategies into daily operations. Embracing this thinking helps teams stay agile and at the forefront of patient-centric advancements.

To begin, biopharmaceutical companies should:

  1. Assess current systems: Identify and document gaps in data integration, system interoperability, patient flow, and cross-team communications that hinder team, partner, and program performance. 
  2. Partner with tech-forward solutions providers: Invest in leading-edge platforms that cater to the life science industry's unique challenges. This should include a client-focused team that understands your unique challenges and offers best practices for improving program outcomes. 
  3. Test, measure, iterate: With the right infrastructure in place, it’s easier for teams to adopt a true “test and learn” mindset that regularly reviews metrics and refines approaches to maximize success. Whether it’s tweaking messages for post-treatment follow-up or other program SOPs, the right tech-forward solution will enable teams to take a more informed, data-driven approach to optimizing the end-to-end patient journey.

By taking these steps, biopharma companies can develop and deliver more connected patient journeys, leading to more efficient and effective patient encounters, better outcomes, and a competitive edge. 

Empowering Patients Through Innovation 

Complex, arduous patient journeys pose significant challenges for patients and the pharmaceutical companies that exist to support them. Access and financial challenges, disjointed handoff, and a lack of collaboration across functions and partners often result in delayed access to life-saving treatments or patients never starting treatment. 

This hinders the potential of specialty therapies and is at odds with biopharma’s mission to improve patient care and health outcomes.

Courier Health is a vital partner in overcoming these obstacles and upgrading the patient experience. Its innovative, industry-first patient CRM connects teams, integrates data, streamlines processes, and increases patient engagement. 

Contact Courier Health today to learn how you can deliver the future of patient engagement and support.

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